tag:blogger.com,1999:blog-170807854514947077.post6948004810512342282..comments2023-05-19T04:22:31.778-04:00Comments on Healing Hopefully: Why I Walk My Wheelchair to Class: Finding the Balance in Chronic IllnessMeggershttp://www.blogger.com/profile/17688539987583679389noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-170807854514947077.post-3549750851723211502015-05-24T15:13:18.756-04:002015-05-24T15:13:18.756-04:00This is a great post. I really relate to alot of ...This is a great post. I really relate to alot of your points. I have CFS and fibro and have been getting worse this year, due to trying to be 'normal' and working full time and doing all the things I like to do outside of work--in other words, no balance. Wheelchairs have been on my mind lately, and alot of your points really hit home. today I was at walmart, and told myself to get the scooter today, as I'm realy exhausted, but I chickened out and walked around. What a huge mistake! It's the idea of all the looks and glares while I walk to the wheelchair, walk out of the wheelchair and then walk to my car. I've got to learn to accept my limitations so that my life in general would be better.....balance..rather than so many hills and valleys. Thanks for this post. It's a great read. Janet jberezowecki@hotmail.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-170807854514947077.post-43568240931945050302013-09-01T06:41:13.936-04:002013-09-01T06:41:13.936-04:00Thanks for reading and responding. However, a walk...Thanks for reading and responding. However, a walker would be completely impractical for my situation. I have a chronic illness called dysautonomia that prevents me from standing up for longer than 5-10 minutes without passing out (especially with the added weight of a book bag). Therefore, having a walker wouldn't be practical because I would have to be standing up the majority of the time, it would have a seat, but once I was sitting there wouldn't be anyway to move anywhere else because once I get feeling like I'm going to pass out I can't use any of my muscles well, especially my legs, so I wouldn't be able to move it anywhere. Also, there may be storage, but probably not storage for a 40 pound book bag that currently just pops on the back of my wheelchair. Plus, my wheelchair only weighs 18 pounds and fits very nicely in my little yellow sports car. :) Trust me, my docs and I talked long and hard about this. No 20 something year old wants to be in a wheelchair for the rest of her life. You just gotta make the best of it. But thanks for the suggestion! It was definitely on the list, but with standing up being the issue all the canes, walkers, rollators, etc. went out the window pretty quickly, unfortunately. :(Meggershttps://www.blogger.com/profile/17688539987583679389noreply@blogger.comtag:blogger.com,1999:blog-170807854514947077.post-86229427911419553012013-08-31T09:26:14.040-04:002013-08-31T09:26:14.040-04:00Wow, wow and wow! Do I identify! May I make a sugg...Wow, wow and wow! Do I identify! May I make a suggestion? A nice walker/rollator with seat might be a better compromise for you? I had to 'graduate' from cane to walker this year. Now I can't say I was super thrilled! In fact it's pretty humbling and gets me down sometimes. By I can't deny the fact that without it? I can't really move anymore. My Dr suggested it and as I was crying she asked me why I was crying? A physical injury or illness is just that! If people want to judge ......pooh on them I guess!! <br />Anyway, I too at times have to use a wheelchair, elec cart etc depending on where I'm at. But for many day to day things and around home I use my walker. Many are very lightweight and would be so much easier for you to put in/out of car. Mine has storage under the seat as well. It may be a better and more practical choice for you for school. Something to think about maybe?<br />As for finding the balance.....I think we all with chronic pain/illness struggle with that for sure!!! Hang in there and thanks for sharing !Countryheart in the suburbshttps://www.blogger.com/profile/08841389609662797008noreply@blogger.com